About Cystic Fibrosis
Cystic fibrosis (CF) is the most common life threatening genetic condition in
Improvements in treatment over the last 50 years mean that now most children will live to an average age of 38. This is fantastic progress, but has also brought about new health challenges such as CF related diabetes and osteoporosis.
Children and adults with CF and their families also face considerable financial, practical and emotional challenges living with a chronic illness.
About Cystic Fibrosis in
People living with CF across
All state associations strive to achieve common objectives by developing a national education programs and collecting and distributing information about cystic fibrosis (CF) at national and international levels. This allows member organisations to efficiently and effectively direct their activities to the provision of high quality health and welfare services to children and young adults with CF and their families.
At Cystic Fibrosis
This includes providing emotional support to children, adults and their families through counselling, sibling camps, and respite programs; practical support through equipment, hospital transfers, physiotherapy, accommodation, and special support for children during hospital stays; advocacy and education programs; and research.
Last year CFQ provided services to over 730 children and adults living with cystic fibrosis and their families, an increase of 27% in just 4 years.
Only 6% of our funding comes from government, which means that we must raise $94 in every $100 we spend, so the financial support of our sponsors, donors, and members is vital to continue our work.
For more information, visit www.cfqld.org.au
Cystic Fibrosis SA (CFSA) is the community based support service for people affected by this disease. With approximately 300 young people living with CF where Our ability to continue this work is done with the assistance of many partners, who contribute in a multitude of ways: financially, donating equipment and/or expertise, volunteering, organising fundraising events or supporting specific activities. To provide services and equipment, including information, counselling, peer group support, practical supports and targeted activities for the general welfare of the CF community and support research into better treatments and a cure. To be an organisation that is recognised and supported by the general community as a trusted and quality organisation. For more information, visit www.cysticfibrosis.org.au/sa/ In essence the work of CFWA remains the same today. Our mission is to contribute to the social, physical and emotional well-being of those affected by CF and to assist in the promotion of research. We provide education, counselling, recreation and home care services. In recent years we have expanded to provide home nursing and physiotherapy services to enable early discharge from hospital. Our Philosophy CFWA provides a variety of support services to meet the recognised needs of people with CF living in the community, their carers and families. These services are for members of the Association and clients for whom a specialised referral has been made by PMH and SCGH. For more information, visit www.cysticfibrosis.org.au/wa/
Cystic Fibrosis South Australia
Mission
To continue to improve the quality of life for everyone affected by cystic fibrosis.
Vision
To facilitate and promote the provision of optimal and holistic care to people affected by CF and to ensure the best quality of life for them.
Cystic Fibrosis Western
fundraise to support research into Cystic Fibrosis.
